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'He Is, After All, a Young Man': Claiming Ordinary Lives for Young Adults with Profound Intellectual Disabilities
Stockholm University, Faculty of Social Sciences, Department of Special Education.
Number of Authors: 22019 (English)In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 21, no 1, p. 120-128Article in journal (Refereed) Published
Abstract [en]

This paper discusses youth and the significance of age in the lives of persons with profound intellectual and multiple disabilities. The analysis is based on an ethnographic research project that explores what makes a good life for this group of people. The findings indicate that whilst the meaning and significance of youth and age were discussed often by care workers and family members, age had very little significance in the lives of our research participants. Youth as a phase of life gets lost in the transition from children's services to adult services: age in the lives of persons with profound intellectual disabilities means merely a move from one service system to another. For the care workers, age provides a way to evaluate and criticize the service system and whether it caters for the individual needs of persons with profound intellectual disabilities.

Place, publisher, year, edition, pages
2019. Vol. 21, no 1, p. 120-128
Keywords [en]
age, good life, lifelong learning, profound intellectual disability, youth
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
URN: urn:nbn:se:su:diva-172083DOI: 10.16993/sjdr.590ISI: 000477958500012OAI: oai:DiVA.org:su-172083DiVA, id: diva2:1344444
Available from: 2019-08-20 Created: 2019-08-20 Last updated: 2019-08-20Bibliographically approved

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