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Experiences of Interpersonal Trauma Among Parents With Intellectual Disabilities: A Systematic Review
Stockholm University, Faculty of Social Sciences, Department of Psychology, Personality, Social and Developmental Psychology.ORCID iD: 0000-0002-2527-9357
Stockholm University, Faculty of Social Sciences, Department of Psychology, Personality, Social and Developmental Psychology.ORCID iD: 0000-0003-0747-5028
Stockholm University, Faculty of Social Sciences, Department of Psychology, Personality, Social and Developmental Psychology. SUF Resource Center, Sweden.ORCID iD: 0000-0002-5519-9956
Number of Authors: 32023 (English)In: Trauma, Violence, & Abuse, ISSN 1524-8380, E-ISSN 1552-8324, Vol. 24, no 4, p. 2843-2862Article, review/survey (Refereed) Published
Abstract [en]

Research has suggested highly elevated levels of interpersonal trauma (IPT) among parents with intellectual disabilities (ID), and that such experiences may contribute to the caregiving and child developmental problems often seen in this population. Conflicting results have however been reported, and there is no systematic review on this matter. This study therefore systematically reviewed the empirical evidence concerning (a) prevalence of IPT among parents with ID, and links with (b) caregiving-relevant and (c) child developmental outcomes, in accordance with the PRISMA 2020 guidelines. Searches were conducted in MEDLINE, CINAHL, PsycINFO, and PTSDpubs. Peer-reviewed empirical articles reporting exposure to any form of systematically assessed IPT (unspecified IPT, physical, sexual, and emotional abuse, neglect, prolonged childhood separations from caregivers, witnessing abuse in the family) among parents with ID were included, yielding a final selection of 20 studies. Findings consistently indicated markedly elevated levels of IPT among parents with ID, with a majority (>50%) having experienced some form of IPT. Estimates for both unspecified and specific forms were typically higher than corresponding estimates in other groups at elevated risk, and than meta-analytical general population estimates in comparable countries. Findings regarding caregiving-relevant outcomes were mixed but indicated links with adverse outcomes, particularly regarding parental mental health. Reports pertaining to child developmental outcomes were scant and inconsistent. We highlight important limitations in the extant literature and provide directions for future research and clinical practice. 

Place, publisher, year, edition, pages
Sage Publications, 2023. Vol. 24, no 4, p. 2843-2862
Keywords [en]
intellectual disabilities, interpersonal trauma, risk factors, abuse, maltreatment, caregiving, child development
National Category
Psychology
Research subject
Psychology
Identifiers
URN: urn:nbn:se:su:diva-209441DOI: 10.1177/15248380221119237ISI: 000850333300001PubMedID: 36062575Scopus ID: 2-s2.0-85139405761OAI: oai:DiVA.org:su-209441DiVA, id: diva2:1696889
Note

This research was supported by grants from the Swedish Research Council (Grant 2017-03315) and the Swedish research Council for Health, Working Life, and Welfare (Grant 2017-01182) awarded to Pehr Granqvist and Tommie Forslund.

Available from: 2022-09-19 Created: 2022-09-19 Last updated: 2024-01-11Bibliographically approved
In thesis
1. Neglected ghosts of contested nurseries: The role of interpersonal trauma and psychosocial adversity for caregiving among parents with intellectual disability
Open this publication in new window or tab >>Neglected ghosts of contested nurseries: The role of interpersonal trauma and psychosocial adversity for caregiving among parents with intellectual disability
2023 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Research on the general parent population has established that parental exposure to interpersonal trauma and psychosocial stressors may negatively influence caregiving and children’s development. Research also suggests that parents with intellectual disability (ID) are disproportionally exposed to interpersonal trauma and psychosocial stressors, and that such exposure may contribute to the elevated risk for caregiving and child developmental problems in this population. Conflicting findings have, however, also been reported, and there is no synthesized picture of the prevalence of interpersonal trauma among these parents, or of associated caregiving-related and child developmental outcomes. There is also a scarcity of research addressing these parents’ exposure to interpersonal trauma and psychosocial stressors, in relation to developmentally informed aspects of caregiving and child development. 

This thesis aims to counter these knowledge gaps. Study I systematically reviewed extant empirical reports on interpersonal trauma among parents with ID, and links with caregiving-related and child developmental outcomes. The review indicated that > 50% of these parents have been exposed to interpersonal trauma. Findings regarding caregiving-related outcomes overall indicated that interpersonal trauma increases caregiving-related risks. Reports on links with child developmental outcomes were scant and inconsistent. Studies II and III present empirical works, focused on parental social-cognitive capacities among mothers with ID. Study II involved a sample of mothers with ID (n = 30), and comparison mothers with ADHD (n = 61), and examined the mothers’ exposure to interpersonal trauma and psychosocial adversity in relation to their capacity for parental mentalizing. Mothers with ID had a heightened risk for mentalizing difficulties, in the form of prementalizing modes of relating to their children. Cumulative interpersonal trauma uniquely predicted prementalizing across groups, whereas psychosocial adversity added to the risk for prementalizing specifically among mothers with ID. Study III involved a second sample of mothers with ID (n = 23) and their children, and socioeconomically matched mothers without ID (n = 25) and their children. This study examined the mothers’ capacity for interpreting infants’ emotions, in relation to the mothers’ exposure to interpersonal trauma, and their children’s attachment. Mothers with ID had a heightened proclivity to misinterpret infants’ emotional expressions as expressions of anger and shame. Shame misinterpretations were also linked with these mothers’ cumulative interpersonal trauma, and with child attachment insecurity and disorganization. An addendum to Study III also addressed the mothers’ psychosocial situation, in relation to maternal sensitivity and the children’s attachment. In both study groups, psychosocial adversity was linked with lower maternal sensitivity. The analysis also suggested that psychosocial adversity contributed to child attachment disorganization specifically among children of mothers with ID. Overall, the thesis points to the importance of acknowledging the parents’ relational history and psychosocial situation, when attempting to understand caregiving-related and child developmental difficulties in families headed by parents with ID. The thesis also outlines important steps for future research, and discusses implications of the findings for practitioners and policy-makers.

Place, publisher, year, edition, pages
Stockholm: Department of Psychology, Stockholm University, 2023. p. 98
Keywords
Intellectual disability, Interpersonal trauma, Psychosocial Risk, Parenting, Child development, Social cognition, Parental mentalizing, Attachment, Intellektuell funktionsnedsättning, Interpersonellt trauma, Psykosocial risk, Föräldraskap, Barns utveckling, Social kognition, Föräldramentalisering, Anknytning
National Category
Psychology
Research subject
Psychology
Identifiers
urn:nbn:se:su:diva-223650 (URN)978-91-8014-593-0 (ISBN)978-91-8014-594-7 (ISBN)
Public defence
2024-01-19, hörsal 7, hus 4, Albano, Albanovägen 12, Stockholm, 10:00 (English)
Opponent
Supervisors
Available from: 2023-12-14 Created: 2023-11-14 Last updated: 2024-02-01Bibliographically approved

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Hammarlund, MårtenGranqvist, PehrForslund, Tommie

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