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Proximal processes of children with profound multiple disabilities
2008 (English)Doktorsavhandling, sammanläggning (Other academic)
Abstract [en]

In this thesis four empirical studies dealt with children with profound multiple disabilities and their parents with regard to: (a) how parents perceived interaction with their children (b) how observed child/parent interaction was linked to behavior style of the children as perceived by the parents (c) how parents of children with profound multiple disabilities perceived child/parent interaction and behavior style of their children in comparison to parents to children without disabilities matched for communicative ability and age respectively, and, (d) how social networks and family accommodations were linked to child/parent interaction and child behavior style over time for these families according to parental appraisals. The results in study I showed that child/parent interaction occurred through out the day and constituted of mutual experience and joy. There were two processes in interaction: monitoring interaction and successful interaction. Study II found hypo- and hyper dominated behaviour style of the children to influence interaction differently. The parents were found to be experts on their children in monitoring interaction to achieve more frequent periods of successful interaction. Study III found few differences in wishes about ideal interaction between parents of children with profound multiple disabilities and parents of typically developing children. Study IV showed that the children were communicative dependent on their parents; there were few complete overlaps between the children’s and the family’s social networks; and although family accommodations were child-driven, sustainability of family life evolved around other factors. There was a “contradiction” in results for the whole thesis: child/parent interaction occurred through out ordinary everyday life and constituted of mutual experience and joy versus the children’s communicative dependency and the distance found between social networks of families and children and child/parent interaction.

Place, publisher, year, pages
Stockholm: Psykologiska institutionen, 2008. 180 p.
Keyword [en]
Children, profound multiple disabilities, interaction, behavior style, family accommodation, social networks, systems theory
National Category
Psychology
Research subject
Psychology
Identifiers
urn:nbn:se:su:diva-8140 (URN)9789171557162 (ISBN)oai:DiVA.org:su-8140 (OAI)
Public defence
2008-10-10, David Magnussonsalen (U31), hus 8, Frescati Hagväg 8, Stockholm, 10:00
Opponent
Supervisors
Available from2008-09-18 Created:2008-09-03 Last updated:2010-10-21Bibliographically approved
List of papers
1. Behaviour style and interaction between seven children with multiple disabilities and their caregivers
Open this publication in new window or tab >>Behaviour style and interaction between seven children with multiple disabilities and their caregivers
2003 In: Child: Care, Health and Development, ISSN 0305-1862, Vol. 29, no 6, 559-567Artikel i tidskrift (Refereed) Published
Identifiers
urn:nbn:se:su:diva-25412 (URN)
Note
Part of urn:nbn:se:su:diva-8140Available from2008-09-18 Created:2008-09-03Bibliographically approved
2. Video observations of dyadic interaction: Behavior style of presymbolic children
Open this publication in new window or tab >>Video observations of dyadic interaction: Behavior style of presymbolic children
2008 In: Scandinavian Journal of Disability Research, ISSN 1501-7419, Vol. 10, no 2, 104-124Artikel i tidskrift (Refereed) Published
Identifiers
urn:nbn:se:su:diva-25413 (URN)
Note
Part of urn:nbn:se:su:diva-8140Available from2008-09-18 Created:2008-09-03Bibliographically approved
3. Parent-child interaction - A comparison of parents' perceptions in three groups
Open this publication in new window or tab >>Parent-child interaction - A comparison of parents' perceptions in three groups
2004 In: Disability and Rehabilitation, ISSN 0963-8288, Vol. 26, no 21/22, 1313-1322Artikel i tidskrift (Refereed) Published
Identifiers
urn:nbn:se:su:diva-25414 (URN)
Note
Part of urn:nbn:se:su:diva-8140Available from2008-09-18 Created:2008-09-03Bibliographically approved
4. Children with profound multiple disabilities: Interaction, family accommodations and social networks
Open this publication in new window or tab >>Children with profound multiple disabilities: Interaction, family accommodations and social networks
In: International Journal of Language & Communication DisordersArtikel i tidskrift (Refereed) Submitted
Identifiers
urn:nbn:se:su:diva-25415 (URN)
Note
Part of urn:nbn:se:su:diva-8140Available from2008-09-18 Created:2008-09-03Bibliographically approved

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