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Living with children who have Celiac Disease: A parental Perspective
Stockholm University, Faculty of Social Sciences, Department of Child and Youth Studies.
2012 (English)In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 38, no 4, 484-489 p.Article in journal (Refereed) Published
Abstract [en]

Background: This study explores how a child’s celiac disease (CD) influences the daily life of families because such knowledge can enhance the understanding of how to support family adjustment to a gluten-free diet (GFD).

Method: We used an interpretative phenomenological approach (IPA), interviewing 20 parents of 14 children diagnosed with celiac disease about their individual thoughts and beliefs.

Results: Once parents know, especially when their children are young, they seem to have the capacity to rapidly adapt to GFD, mainly because they notice how quickly their children recover. Parents may have problems controlling how staff at day-care and at school complies with their information about a GFD.

Conclusions: To ensure that children with CD are given a GFD at daycare and school, it is necessary for municipalities to educate staff about the disease and to give them the prerequisites for serving a GFD.  There is also a need of early identification of children who may have CD. When parents express their worries, not just at the hospital but also at the well-baby clinic and primary care units, supporting treatment could prevent children from suffering from inappropriate food.

Place, publisher, year, edition, pages
2012. Vol. 38, no 4, 484-489 p.
Keyword [en]
Children, Celiac Disease, Parental Perspective, Adaption process
National Category
Research subject
Child and Youth Science
URN: urn:nbn:se:su:diva-57356DOI: 10.1111/j.1365-2214.2011.01273.xISI: 000304753900005OAI: diva2:415501
Available from: 2011-05-06 Created: 2011-05-06 Last updated: 2012-10-12Bibliographically approved

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Cederborg, Ann-Christin
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