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2025 (engelsk)Inngår i: Digital Health, E-ISSN 2055-2076, Vol. 11Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]
Background: Experiencing a stroke disrupts the expected life course and can negatively impact cognitive, emotional, and physical functioning, making it a major source of disability globally. To support recovery, individuals can seek help by sharing their experiences in peer-to-peer support communities.
Objective: The objective of this study was to use discourse analysis to examine how members of a peer-to-peer online support community for stroke survivors construct their understanding of the condition and use narratives to reconstruct their identity into different subject positions.
Methods: The study context was a private Swedish peer-to-peer online support community created and administered by middle-aged people with lived experience of stroke. Data was collected through structured protocols that captured the content of posts and comments (n = 397). The analysis has followed the principles of Laclau and Mouffes discursive framework.
Results: Our findings suggest that identity struggles revolve around looking ahead and negotiating normative expectations with oneself and others. We identified five subject positions: survivor, pathfinder, mentor, struggler, and outsider. These positions highlight the plurality and fluidity of post-stroke identity processes. Members often shifted between these roles based on changes in health, emotional state, or community interactions.
Conclusions: The diversity of subject positions demonstrates that stroke recovery is not a uniform process, emphasizing the importance of recognizing identity work as a core aspect of post-stroke adaptation. The findings highlight the need for more flexible, patient-centered services that accommodate diverse narratives, including those shaped by long-term disability, emotional trauma, and shifting life priorities.
Emneord
Peer-to-peer online support, stroke, recovery process, normative discourses
HSV kategori
Identifikatorer
urn:nbn:se:su:diva-249344 (URN)10.1177/20552076251376274 (DOI)001566926300001 ()40937068 (PubMedID)
2025-11-112025-11-112025-11-11bibliografisk kontrollert